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writing for godot

I WAS A PERSON

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Friday, 25 November 2011 18:33
My name is Paul Flannery, and I was one of the 4% of US adults with severe mental illness. We do not seem to have a voice in this whole "Occupy" movement. The call to save Medicaid funding once again leaves my fellow 4% out in the cold. For some, that is a literal statement.

You see, Medicaid funding for long-term, in-patient treatments is denied to Medicaid eligible adults who are unlucky enough, like I was, to have an illness in their brain, instead of their heart, or lung or some other organ in their body. There is even a law against us, it is called the Medicaid Institutes for Mental Diseases (IMD) Exclusion.

Because people with severe brain disorders, like schizophrenia and bipolar disorder, are denied access to appropriate long-term, in-patient treatments, 200,000 of us are homeless, 500,000 of us are in prison, we cycle in and out of the local emergency rooms, psych wards, and jails by the millions, and we die, on average, 25 years sooner than you, the other 96%, due to medical neglect. You traded state hospitals for homelessness, incarceration, and death. This is not protecting our civil liberties.

I died three years ago; I was only 48 years old. You could be my voice, and the voice of the 4%. Please tell Congress to repeal the discriminatory Medicaid law that puts long-term, in-patient treatments out of our reach. It is literally killing us.

Repeal the Medicaid Institutes for Mental Diseases (IMD) Exclusion
 

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+8 # WLawpsh 2011-11-27 04:57
My God, how can this crime against humanity have occurred in a constitutional democracy under the rule of law whose Constitution proclaims the intent of the nation's existence to be the establishment of Justice, Tranquility, defence, Welfare and Liberty?

It can't. The United States stopped being that when the US Supreme Court took the internal decision to permit the American empire by refusing judicially to review the unconstitutiona lity of the first federal imperial statute the Appropriations Act of 1871, pursuant to which the invasion of the territorial sovereignty of the Indian tribes was inaugurated.

Foreign policy and domestic policy are one when it comes to empire because empire is by nature and character altogether mean, vicious and elitist. The solution is to force the US Supreme Court to reinstate constitutional democracy. Maybe Paul can help influence this from the other side.

A legal remedy does exist, albeit the prospect that the rule of law can be reinstated is remote. Please see the website "Might Is Not Right" at http://mightisnotright.org/ and know, Illene and Paul, that others share your heartbreak and your caring aspiration that the tragedy of Paul's mistreatment will not be repeated forever.

Your article is devastating and inspiring. Thank you.

Sincerely,
W'Lawpsh
 
 
+8 # ilenewells 2011-11-27 13:28
Thank you...Please go to my website: www.paulslegacyproject.org for more information about Paul - you can read his full story, which was published last year in Psychiatric Services, a journal of the American Psychiatric Association. You can also read more about the Medicaid Institutes for Mental Diseases (IMD) Exclusion.

Paul was my twin brother. I lost him twice, once to schizophrenia and then again to lung cancer due to medical neglect. I tell people that he was actually one of the lucky ones...he was never street homeless or incarcerated. That is a sad testament to the state of medical care for people with severe mental illness.

Please contact your members of Congress to urge them to repeal the IMD Exclusion.

Thanks again for your comment.
 
 
+7 # AdvocateForSMI 2011-11-28 06:12
Paul's story is powerful. People with serious mental illness are denied care in so many ways. The IMD exclusion is only topped by those that argue against treating people who are too sick to even know they're sick. Thank you for your advocacy Ilene.
 
 
+4 # ilenewells 2011-11-28 06:36
Please go to my website, Paul's Legacy Project, for more information about the Medicaid Institutes for Mental Diseases (IMD) Exclusion...www.paulslegacyproj ect.org

Thank you.
 
 
+7 # Laurie Flannery 2011-11-28 07:36
This is so inspiring I so hope this will pass. Congress needs to worry about something that truly affects so many helpless people instead of their own special interests.

Love Laurie
 
 
+3 # ilenewells 2011-11-28 09:20
Thanks Laurie! Maybe you and Johnny can come to Seattle when I speak at the NAMI conference in June. Love you too!
 
 
+3 # ilenewells 2011-11-28 09:21
Paul's Legacy Project...www.paulslegacyproj ect.org
 
 
+5 # ilenewells 2011-11-28 10:06
The Medicaid Institutes for Mental Diseases (IMD) Exclusion is not the sole reason for homelessness, incarceration, and death for people with severe mental illness, but it was one of the major catalysts that lead to the wide spread closing of state hospitals we see today.

Since the states have to pay 100% of the costs for the care of Medicaid eligible adults who are treated in states hospitals, it has put a huge burden in their state budgets. Along with that, they have misinterpreted a Supreme Court decision upholding a person's right to live in the community, if they are capable, and there is proper supportive housing available... And that is where the problems began. When 50% of all people with schizophrenia, totalling millions of people, don't even understand they are sick, and the community mental health system requires they initiate treatment, and do not provide supportive housing, no wonder so many become homeless and wind up in jail, or are killed by police or die of other medical illnesses.

Got to www.treatmentadvocacycenter.org to learn more about AOT laws. And go to www.paulslegacyproject.org to learn more about the IMD Exclusion
 
 
+4 # ilenewells 2011-11-30 13:24
Recent update on numbers of people with severe mental illness in prison. Clinical Psychiatry News just reported that the "U.S. correctional institutions are estimated to be housing 1 million men and women with serious mental illnesses such as schizophrenia or a major affective disorder, investigators reported at the annual meeting of the American Academy of Psychiatry and the Law." I had understood the figure by half that!

If you are willing to click on a link. Here is the link to the story: http://www.clinicalpsychiatrynews.com/index.php?id=2623&type=98&tx_ttnews%5Btt_news%5D=93552&cHash=da03e20e36

Otherwise you can google: Severe Mental Disorders Highly Prevalent in Jails, Prisons
 

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